Genomics gets personal: property, persons, privacy

Thursday, September 27, 2012, 6:00 PM to 8:30 PM
Location: Byers Auditorium at Genentech Hall, UCSF Mission Bay Campus, 600 16th Street, San Francisco

UC Santa Cruz invites you to a special event featuring a panel discussion on the ethical and legal questions around personal genomics.

Tremendous advances in sequencing technologies have transformed genomes into a valuable new source of data about the biology of individuals. While these new data promise a revolution in medical care, more immediately they pose fundamental new ethical, social, and legal questions about ownership and control of our bodies and their molecular constituents.

To what extent are genomes the property of persons, and thus subject to their control?
To what extent should genomes be shared in pursuit of medical breakthroughs or profit by others?

Please join a panel of experts to explore these questions and offer insights on how we can advance personal genomics within ethical and legal frameworks that respond to these fundamental questions about individual rights, property, and the nature of public goods in a genomic age.

SCHEDULE

6:00–6:30 pm  Networking and refreshments
6:30–8:00 pm  Panel discussion and Q&A
8:00–8:30 pm  Networking and refreshments

Hosts and DISTINGUISHED PANELISTS

Introduced by David Haussler, UCSC
Investigator, Howard Hughes Medical Institute
Scientific Co-Director, California Institute for Quantitative Biosciences (QB3)
Director, UCSC Center for Biomolecular Science & Engineering (CBSE)
Distinguished Professor, Biomolecular Engineering, UC Santa Cruz

Moderated by Jenny Reardon, UCSC
Associate Professor of Sociology, UC Santa Cruz
Director, UCSC Science & Justice Working Group
CBSE Faculty Affiliate

Robert Cook-Deegan
Research Professor, Genome Ethics, Law & Policy
Director, Center for Genome Ethics, Law and Policy, Duke Institute for Genome Sciences and Policy
Author of Gene Wars: Science, Politics and the Human Genome Project

Gail P. Jarvik
Head, Division of Medical Genetics
Arno G. Motulsky Endowed Chair in Medicine
Professor of Genome Sciences
University of Washington Medical Center

Ryan Phelan
Founder and CEO, DNA Direct
Founder, Planetree
Founder and CEO, DirectKnowledge
Co-Founder and CEO, All Species Foundation

John Wilbanks
Director, Sage Bionetworks
Director, Consent to Research project (CtR)
Co-founder of the Access2Research petition
Senior Fellow in Entrepreneurship, Ewing Marion Kauffman Foundation

Registration

Register online by September 21
Map
For questions, please contact Nicki Evanovich at 831-459-4339 or foundation@ucsc.edu.

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SCHEDULE

Hosts and DISTINGUISHED PANELISTS

Registration

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